Mentor / Mentee Board
Connect with others in the Duane Syndrome community. Find a mentor who understands what you're going through, or become one for someone who needs guidance.
Adult with Type 1 DS in the left eye. Had surgery at age 7. Happy to chat with parents of newly diagnosed kids about what to expect, school tips, and when surgery might help. Based in the US (EST timezone).
Contact: Email me through the site
Parent of a 4-year-old recently diagnosed with Type 1. Looking for other parents who can share their experience — especially about the surgery decision. We're in Israel.
Contact: Email me through the site
Teen (17) with bilateral Type 3 DS. Been dealing with this my whole life and I'm happy to talk to other teens who feel alone or different. It gets SO much better, I promise.
Contact: DM on Instagram