One Shared Vision

Your home for research, lived experiences, and meaningful connection in the Duane Syndrome community.

Whether you're a patient, a parent, or a medical professional, we provide a space to navigate the unique challenges of DS together. From the latest clinical breakthroughs to the stories that make us feel seen, we are here to bridge the gap between diagnosis and daily life.

Learn About Duane Syndrome Join the Community

Your Path Starts Here

Understand

Learn about types, causes, and treatments of Duane Syndrome

Research

Explore the latest scientific studies with AI-powered summaries

Connect

Join a global community of patients, parents, and allies

Thrive

Discover daily tips and life hacks from people who get it

Wall of Stars

Professional Dancer

Claudia (Example)

Professional contemporary dancer performing internationally. Diagnosed with Type 1 DS at age 4. Has spoken publicly about how dance helped her embrace her unique perspective — literally.

Software Engineer at a Major Tech Company

Michael (Example)

Senior engineer working on computer vision — a field that requires deep understanding of how eyes work. "Having Duane Syndrome made me fascinated by how vision actually functions."

Pediatric Ophthalmologist

Noa (Example)

Treats children with strabismus conditions including Duane Syndrome. Was inspired to enter the field after her own diagnosis at age 6. "I wanted to be the doctor I needed as a child."

Hack of the Week

The "Shoulder Tap" Trick for Group Photos

When someone asks for a group photo, lightly tap the shoulder of the person next to you and ask them to stand on your preferred side. Most people happily switch — and you get a photo where you can look straight at the camera without turning your head.

Submitted by Jamie R.

3 comments