Privacy Policy

Information We Collect

• Email address — when you subscribe to our newsletter or submit feedback
• Account information — if you sign in via Google or Facebook (name, email, profile picture)
• Anonymous analytics — page views and interactions via Vercel Analytics and Microsoft Clarity
• Content submissions — specialist suggestions, stories, or other contributions you submit

How We Use Your Information

• Deliver newsletter updates about Duane Syndrome research and community news
• Respond to your feedback and questions
• Improve the website based on usage patterns
• Display community contributions (stories, specialist recommendations) after review

Third-Party Services

We use the following services to operate this portal:

• Clerk — authentication and user accounts
• Resend — sending emails (newsletters, confirmations)
• Vercel — hosting and analytics
• Microsoft Clarity — anonymous session recording and heatmaps
• Sanity — content management
• Turso — database storage

Cookies

We use essential cookies for authentication (Clerk session) and analytics (Vercel, Microsoft Clarity). We do not use advertising or tracking cookies.

Your Rights

• Unsubscribe from the newsletter at any time via our subscribe page
• Request deletion of your account and data by contacting us
• Access or correct your personal information

Contact

For privacy-related questions, please reach out via our contact page.