Our Mission
Supporting the Duane Syndrome community through connection.
Why This Portal Exists
Duane Syndrome affects approximately 1 in 1,000 people, yet reliable, accessible information can be hard to find. Many patients and parents discover the diagnosis with little context and few resources. This portal was created to change that — a single place where the community can learn, connect, and support each other.
Who We Serve
- Patients — children and adults living with Duane Syndrome
- Parents and families — navigating diagnosis, treatment, and daily life
- Clinicians — ophthalmologists and strabismus specialists looking for community insights
- Researchers — studying eye movement disorders and cranial nerve development
What We Do
- Provide clear, accurate information about Duane Syndrome types, treatments, and daily life
- Maintain a directory of specialists with experience treating Duane Syndrome
- Share the latest research with accessible summaries
- Connect community members through stories, mentorship, and shared experiences
- Offer practical tools like the gaze simulator, screening tool, and explanation templates
Built by the Community
This portal is driven by contributions from people around the world — specialist recommendations, personal stories, research tips, and feedback that makes this resource better every day. If you'd like to help, we'd love to have you.